Monday, August 31, 2009


Just thought I would give you guys a little update. Preston and Claire had a really good day. They act like they should be at home. They are LIVE WIRES!!! Especially Preston. He has been all over this hospital...talking with people, flirting with the nurses, showing off and playing. He wears me and everybody else that tries to keep track of him out. Today he wore a shirt that said "ME for President" All the nurses LOVED it and of course stated that they would vote for him. Total Mess...but I'm so glad he is doing better. His blood levels are better. He is receiving platelets tonight but that's it. Many of you are thinking...that's it? That's a pretty big deal. Well, from where we've been...receiving only platelets in a day is GREAT! Preston still has a poor appetite but I think it is slowly improving. Claire is also doing really well. Her Hgb dropped today, but they decided to wait on the blood and see how she does. She has had two different nose bleeds today because of her low platelet count. I look for her to receive platelets tomorrow. She is still pretty irritable and short fused. Sad to say...the nurses kinda fear her. They always have another nurse go in with them if they are planning on touching her. I heard in nurses report this..."OH and WATCH OUT for HER she is a B I T E R and she'll try to bite you every chance she gets." So EMBARRASSING...but I always knew she was a fighter. Her appetite has greatly improved. She ate really good at lunch but she wasn't able to keep it down. Supper she kept down with only a few gagging experiences. Hopefully, these two will get to go home SOON. Griffin...poor Griff...He's still my little sick one. He's taken this really hard...maybe even worse than Preston did. Griffin's kidney function is still really poor but today they gave him a diuretic to get some of the fluid off. It took him awhile but he finally had a wet diaper. He's dumping a lot of blood in his urine which is normal but it also tells you that he is still in the active phase of HUS. We're just trying to take one day at a time. Thank you for your prayers. We'll let you all know if anything changes.


Anonymous said...

Hi Jennifer, it's Farrah! I heard about your babies through facebook and I just wanted to say I'm praying for you guys. Your babies are so precious...I'm so glad you have this blog - I often wonder how you guys are doing and it's great to see pics of them! ((Hugs)) to you sweetie.

Anonymous said...

Found you site from a prayer request. I have been keeping you all lifted in prayer since.

Randomly, a friend sent me an article from the Washington Post about a woman with HUS from eating raw cookie dough, the pre-packaged kind that had been recalled.

So glad to hear that you kids are on the up-swing and that they have the energy to be little flirts and fighters. Hang in there!

Kelsey said...

I just wanted to tell you that I forgot that we are leaving to go on vacation Wednesday! So, i guess that I will not longer be able to come down Friday and help you guys. I feel really bad because I really wanted to help out. I don't know if you able this daily, so I will try to track down your cell phone to make sure you get this message. I hope things are getting better each day. We are still praying! Love you guys! --Kelsley